Since Emily was born 10 weeks premature, was in the NICU for 57 days, went into respiratory failure at 2 days old for 1 1/2 hours, and took forever to finally learn to take a bottle - she has to go to a developmental clinic. Most preemies do go to some sort of clinic, here in Georgia it's normally babies can't wait, but Emily ended up having to go to a specialist that is over an hour from my home. It took six months to get into the place mainly because they really concentrate on children with severe brain damage (which we were initially afraid Emily had).
I think it's hard to understand if you're not in my situation, but what's easy to understand is that no one wants to hear there is something wrong with their baby. I did not go in thinking there was anything wrong with her. We had seen babies can't wait right after she was born because my pediatrician recommended it and at that time she was behind mentally but great physically. We really worked hard on the coordination and playing so when this clinic appointment came about we figured they were going to tell us she was doing fantastic. We had got her to the mental level she was expected to be at and since we were told her physicality was great we didn't think there was a problem. We were wrong.
Sitting at that appointment no one said much. A couple of different doctors came in to visit then would leave us alone. I was assuming they were talking about how great she was doing. When they came in to tell us what was going on I can honestly say I thought it was a joke. My daughter was and still is perfect and what they were telling me seemed like a giant joke of some of the most picky things but they were so serious I started to worry. They sat her in front of me and started picking out every single small flaw they could find. I know they were doing their job but no one wants to hear what I was hearing. They said she had torticollis which is a head tilt disorder. The muscle in her neck was pulling her left cheek and ear down making her face uneven (I would've never noticed if they didn't point it out). She was very behind in every way from what they were telling me. She was almost on point mentally but not where they wanted her to be. She was about two months behind on her physical aspect. And the thing was she was 7 months at this point so they were comparing her to a 5 month old so she was supposedly far behind what a 5 month would be.
So after that appointment we ended up seeing a dozen different specialist. We had originally thought all the specialist were done with when she got her heart monitor off but not that lucky. She had to go to an audiologist to make sure she wasn't going deaf because the antibiotic they used on her that they use on all preemies can cause deafness. She then had to go to physical therapy to work on her head tilt and learn to crawl.
Physical therapy ended two weeks ago and we're waiting for insurance to approve three more months because although she's improved her tilt to the point it doesn't exist, she still cannot crawl. I like to think she will walk before she crawls but we'll see.
She has an appointment tomorrow at that clinic. I already know what they're going to say. I'm not going in all optimistic like I did last time because I realize their expectations are high but with all good intentions. I figure they'll mention the fact she's not crawling yet and talk about that slight tilt she has when she's tired.
But at the end of the day no matter what they say she's perfect in every way!
On another note, Emily and me worked on her first art project. That will be my next post!
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